|
 PERSEVERE is a national study funded by the National
Institutes of Health, led by Dr. Jori Fleisher at Rush University
Medical Center in Chicago, IL, which is testing an educational program for
family caregivers of people with Parkinson’s Disease with cognitive
impairment, Parkinson’s Disease Dementia, Dementia with Lewy Bodies, or Lewy
Body Dementia. PERSEVERE will test whether a disease-specific,
caregiver-centered educational intervention improves caregiver knowledge,
confidence, strain, and health outcomes – and whether it helps people living
with Parkinson’s Disease Dementia, Dementia with Lewy Bodies, or Lewy Body
Dementia, too.
Family caregivers will receive weekly educational
guidance through a 12-week curriculum with resources and activities. All
participation is virtual and scheduled when it works for you. There
are no in-person visits and the person with Parkinson’s Disease,
Dementia with Lewy Bodies, or Lewy Body Dementia does not participate—just
caregivers. Caregivers fill out online surveys and assessments at baseline
and every two weeks throughout their involvement in the study, including a
six-month follow-up period after the 12-week curriculum.
You can learn more about the study at https://redcap.link/PERSEVERE1 where
you can watch a video providing more information about the study
and hear testimonials from prior PERSEVERE study
participants.
|